Experimental therapy saves child born 'without bones'
Monday, April 22, 2013 - 11:06
in Health & Medicine
Four years ago, Janelly Martinez-Amador was confined to a bed, unable to move even an arm or lift her head. At age 3, the fragile toddler had the gross motor skills of a newborn and a ventilator kept her alive. She was born with thin, fragile bones, and by 3, she had no visible bones on X-rays. Initially, doctors weren't sure she would survive her first birthday. In May, Janelly will turn 7, and is developing bone with the help of an experimental drug therapy.